Resources
The organizations listed below are a few of the many that provide services
and information about disability issues to families and professionals.
We have selected these organizations because they may be able to respond
to questions about the assessment of specific disabilities or provide
guidance about the IEP development process. When calling or writing
an organization, it is always a good idea to be as specific as you can
in stating your needs and concerns. This helps organizations provide
you with information that is truly helpful and on target.
Primary Coaching
in Early Childhood information:
www.coachinginearlychildhood.org
Clearinghouses
and Information Center -------------------------------------
DB-LINK
National Information Clearinghouse on Children Who Are
Deaf-Blind
345 N. Monmouth Avenue
Monmouth, OR 97361
(800) 438-9376 (voice)
(800) 854-7013 (TTY)
E-mail: dblink@tr.wou.edu
Web: www.tr.wou.edu/dblink/
ERIC
- Clearinghouse on Disabilities & Gifted Education
Council for Exceptional Children (CEC)
1110 N. Glebe Road, Suite 300
Arlington, VA 22201-5704
(800) 328-0272 (voice/TTY)
E-mail: erice@cec.sped.org
Web: ericec.org
Laurent Clerc National
Deaf Education Center & Clearinghouse
KDES PAS-6
800 Florida Avenue, NE
Washington, DC 20002-3695
(202) 651-5051
(202) 651-5052 (TTY)
E-mail: Clearinghouse.Infotogo@gallaudet.edu
Web: clerccenter.gallaudet.edu/InfoToGo/index.html
National
Health Information Center
PO Box 1133
Washington, DC 20013-1133
(800) 336-4797
(301) 565-4167
E-mail: nhicinfo@health.org
Web: nhic-nt.health.org
National
Organization for Rare Disorders (NORD)
PO Box 8923
New Fairfield, CT 06812-8923
(800) 999-6673; (203) 746-6518 (voice)
(203) 746-6927 (TTY)
E-mail: orphan@rarediseases.org
Web: www.rarediseases.org
Other Organizations
---------------------------------------------------------------
American Foundation
for the Blind (AFB)
11 Penn Plaza, Suite 300
New York, NY 10001
(800) 232-5463
(212) 502-7662 (TTY)
Publications available in Spanish
E-mail: afbinfo@afb.org
Web: www.afb.org
American Occupational
Therapy Association (AOTA)
4720 Montgomery Lane
PO Box 31220
Bethesda, MD 20824-1220
(301) 652-2682 (voice)
Web: www.aota.org
American
Physical Therapy Association (APTA)
1111 North Fairfax Street
Alexandria, VA 22314
(800) 999-2782; (703) 684-2782 (voice)
(703) 683-6748 (TTY)
E-mail: practice@apta.org
Web: www.apta.org
American
Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD 20852
(800) 498-2071 (V/TTY)
(301) 571-0457 (TTY)
Publications available in Spanish.
Spanish speaker on staff.
E-mail: actioncenter@asha.org
Web: www.asha.org
The
Arc
(formerly the Association for Retarded Citizens of the U.S.)
1010 Wayne
Avenue, Suite 650
Silver Spring, MD 20910
(301) 565-3842
E-mail: info@thearc.org
Web: www.thearc.org
Autism
Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
(800) 328-8476
(301) 657-0881
Publications available in Spanish.
Web: www.autism-society.org
Brain
Injury Association
(formerly
the National Head Injury Foundation)
105 North Alfred Street
Alexandria, VA 22314
(800) 444-6443 (family helpline)
(703) 236-6000
E-mail: FamilyHelpline@biausa.org
Web: www.biausa.org
Children
and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 201
Landover, MD 20785
(800) 233-4050 (to request information packet)
(301) 306-7070
E-mail: national@chadd.org
Web: www.chadd.org
Council
for Exceptional Children (CEC)
1110 N. Glebe Road, Suite 300
Arlington, VA 22201-5704
(703) 620-3660 (voice)
(703) 264-9446 (TTY)
E-mail: cec@cec.sped.org
Web: www.cec.sped.org
Easter Seals - National Office
230 West Monroe Street, Suite 1800
Chicago, IL 60606
(800) 221-6827; (312) 726-6200 (voice)
(312) 726-4258 (TTY)
E-mail: info@easter-seals.org
Web: www.easter-seals.org
Epilepsy Foundation - National Office
4351 Garden City Drive, 5th Floor
Landover, MD 20785-4941
(800) 332-1000
(301) 459-3700
Publications available in Spanish.
Spanish speaker on staff.
E-mail: postmaster@efa.org
Web: www.efa.org
Family Resource Center on Disabilities
20 East Jackson Boulevard, Room 900
Chicago, IL 60604
(800) 952-4199 (voice/TTY; toll-free in IL only)
(312) 939-3513 (voice)
(312) 939-3519 (TTY)
International
Dyslexia Association
(formerly the Orton Dyslexia Society)
Chester Building #382
8600 LaSalle Road
Baltimore, MD 21286-2044
(800) 222-3123
(410) 296-0232
E-mail: info@interdys.org
Web: www.interdys.org
International Rett Syndrome Association
9121 Piscataway Road, Suite 2B
Clinton, MD 20735-2561
(800) 818-7388
(301) 856-3334
E-mail: irsa@rettsyndrome.org
Web: www.rettsyndrome.org
Lawrence
Public Schools Parents as Teachers
East Heights Early Childhood Family Center
1430 Haskell Avenue
Lawrence, Kansas 66044
(785) 832-2386
Web: http://schools.usd497.org/eastheights/pat.htm
Learning
Disabilities Association of America (LDA)
4156 Library Road
Pittsburgh, PA 15234
(888) 300-6710
(412) 341-1515
(412) 341-8077
Publications available in Spanish.
E-mail: info@ldaamerica.org
Web: www.ldanatl.org
Muscular
Dystrophy Association (MDA)
3300 East Sunrise Drive
Tucson, AZ 85718
(800) 572-1717
(520) 529-2000
Publications available in Spanish.
Spanish speaker on staff.
E-mail: mda@mdausa.org
Web: www.mdausa.org
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three, 2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(800) 950-6264
(703) 524-7600
(703) 516-7991 (TTY)
Publications available in Spanish.
Spanish speaker on staff.
E-mail: namiofc@aol.com
Web: www.nami.org
National
Association of School Psychologists
4340 East West Highway, Suite #402
Bethesda, MD 20814
(301) 657-0270
(301) 657-4155 (TTY)
E-mail: nasp@naspweb.org
Web: www.naspweb.org
National
Association of State Directors of Special Education (NASDSE)
1800 Diagonal Road, Suite 320
Alexandria, VA 22314
(703) 519-3800
(703) 519-7008 (TTY)
E-mail: nasdse@nasdse.org
Web: www.nasdse.org
National
Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
1-800-232-6372 (Toll free)
(770) 604-9500
Parent packet available in Spanish.
Spanish speaker on staff.
E-mail: ndsccenter@aol.com
Web: www.ndsccenter.org
National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012-2317
(800) 221-4602
(212) 460-9330
E-mail: info@ndss.org
Web: ndss.org
National Spinal Cord Injury Association
8300 Colesville Road, Suite 551
Silver Spring, MD 20910
(800) 962-9629
(301) 588-6959
E-mail: nscia2@aol.com
Web: www.spinalcord.org
Spina Bifida Association of America
4590 MacArthur Boulevard, N.W., Suite 250
Washington, DC 20007-4226
(800) 621-3141
(202) 944-3285
Publications available in Spanish.
E-mail: sbaa@sbaa.org
Web: www.sbaa.org
TASH
(formerly the Association for Persons with Severe
Handicaps)
29 W. Susquehanna Avenue, Suite 210
Baltimore, MD 21204
(410) 828-8274 (voice)
(410) 828-1306 (TTY)
E-mail: info@tash.org
Web: www.tash.org
Technical Assistance Alliance for Parent
Centers (the Alliance)
PACER Center
8161 Normandale Boulevard
Minneapolis, MN 55437-1044
(888) 248-0822; (952) 838-9000
(952) 838-0190 (TTY)
Spanish speaker on staff.
E-mail: alliance@taalliance.org
Web. www.taalliance.org
United Cerebral Palsy Association, Inc.
1660 L Street, N.W., Suite 700
Washington, DC 20036
(800) 872-5827; (202) 776-0406
(202) 973-7197 (TTY)
Publications available in Spanish.
E-mail: ucpnatl@ucpa.org
Web: www.ucpa.org